June 2015 Coordinating Center On Epilepsy Aap Org-Books Pdf

June 2015 Coordinating Center on Epilepsy AAP org
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Page 2 June 2015 Newsletter Coordinating Center on Epilepsy. Improving Transitional Care for Children and Youth with Epilepsy. Article in March April 2015 Newsletter of the Association of Maternal and Child Health Programs AMCHP. Authored by Trisha Calabrese MPH and State Grantees. Although children and youth represent one of the fastest growing populations affected by epilepsy many do not have access to. pediatric neurologists and high quality coordinated care provided in a medical home In fall 2013 the American Academy of Pedi. atrics AAP was proudly selected as the Coordinating Center for Children and Youth with Epilepsy under a Health Resources and. Services Administration HRSA Maternal Child Health Bureau MCHB Cooperative Agreement The overarching vision of the Cen. ter is to establish a multifaceted community based system of care that ensures that children and youth with epilepsy CYE have. access to the services required to achieve optimal health outcomes and an improved quality of life The AAP is working with. several state grantees to develop and implement a comprehensive evaluation methodology to support and monitor the various. projects outcomes A key component of this program is to ensure that grantees are also addressing transitional care for CYE. Various grantees are creating epilepsy transition clinics webinars trainings for providers and families on beginning the transitional. process webinars and more For example several of the grantees reported the following. During the summer of 2014 the Epilepsy Foundation of Texas offered a transition program to 147 campers during a weeklong. summer camp The program consisted of a series of four sessions to introduce concepts of self advocacy in relationship to. personal health management and transitioning in relationship to assuming greater responsibility for health care routines Re. sults of follow up surveys from campers and parents reported improved medication adherence an increase in self advocacy. skills and improved communication skills Ninety four percent of parents caregivers agreed the transition programming was. important information for their youth and reported observed improvements in personal appearance and hygiene self. advocacy knowledge about epilepsy willingness to be around others and remembering medication schedules Parents. caregivers also reported CYEs were happier had more positive attitudes and exhibited a greater willingness to help with. household chores, The Maryland Team through the Parents Place of Maryland and the Office for Genetics and People with Special Health Care. Needs is working on a learning collaborative with primary care pediatricians This initiative focuses on improving access to. comprehensive coordinated health care and other services for CYEs including youth transition to adult care within the medi. cal home framework Through the use of monthly quality improvement conference calls webinar based didactic sessions and. in practice team meetings the practices will work toward developing and implementing a transition policy establishing crite. ria for transitioning youth and developing a plan for transition of care Two key components of the learning collaborative in. clude the training and placement of parent partners within each pediatric practice and the partnership with Epilepsy Founda. tion Chesapeake Region EFCR Through the partnership with the EFCR the Teen Epilepsy Empowerment Now TEEN group. was established This social and educational group for teens with epilepsy combines learning sessions on topics such as com. mon seizure triggers seizure action plans and transitioning to adult care with fun activities like bowling movies and an annu. al outdoor retreat, The Cleveland Clinic Foundation Pediatric Epilepsy Center s Transition Clinic has created a Journey to Adulthood Work. book It is their hope that this workbook will assist patients and families during this transition process During their visits to. the Transition Clinic patients and families will work together with the Social Worker in completing their individual short term. and long term goals By meeting their personal goals they will be able to move closer towards independence as they begin. taking more responsibility in managing their own healthcare needs The Journey to Adulthood Workbook will be provided as. a tool to help them become more independent as they enter adulthood highlighting the changes that teens go through from. the ages of 14 through 22 Helpful tips have been included that will encourage them to begin thinking about the steps that are. needed for the transition process especially as it relates to their diagnosis of epilepsy The Journey to Adulthood Workbook. can also help patient s current and future healthcare providers learn more about them and their health care needs The Cleve. land Clinic Pediatric Epilepsy Center s Transition Clinic anticipates that Journey to Adulthood Workbook will be ready for. distribution by September 2015, The Epilepsy Foundation of Western Central Pennsylvania developed its first Teen Leadership Summit which took place from. March 20 22 2015 at Camp Allegheny in Stoystown PA The event was designed for youth ages 14 18 with a diagnosis of. epilepsy seizure disorder and a desire to build personal and leadership skills The agenda for the Summit was based on rec. ommendations for content and activities which were solicited from youth family members and primary care and specialty. practices It included an overview and presentations activities on the following topics leadership self advocacy social issues. including self awareness stigma bullying drugs and alcohol and personal adjustment transition including employment. post secondary education training accommodations supports goal setting and transition to adult healthcare A variety of. materials such as a bullying tip sheet transition activity planning grid lifestyle modification tips healthcare contact sheet. seizure action plan seizure record form seizure calendar and the PA Department of Health Transition to Adult Living in Penn. sylvania Transition to Adult Healthcare Checklist, Page 3 June 2015 Newsletter Coordinating Center on Epilepsy. Improving Transitional Care for Children and Youth with Epilepsy cont d. An immediate and positive outgrowth of the Teen Leadership Summit is the plan for a statewide conference on transition. to adult life and healthcare for families and youth impacted by epilepsy This historic event will be held from July 31. August 2 2015 at the Hershey Lodge and Convention Center in Hershey PA Patti Hackett Hunter leader of the former. federal Healthy and Ready to Work Project will provide a keynote presentation and follow up activities overviewing the. importance of healthcare transition and the need for youth to acquire the knowledge and skills to take responsibility for. their current and future healthcare, The Michigan Department of Community Health is focusing on transition to adulthood for children and youth with epilepsy.
utilizing telemedicine technology Existing framework involves the use the medical home and telemedicine as the methodolo. gy to improve access to care for children and youth with epilepsy in rural and medically underserved areas in Michigan One. section of the demonstration pilot is focused on connecting our youth families primary care providers and pediatric and. adult specialists for transition planning and transfer of care through the use of telemedicine technology Two telemedicine. appointments are being used to accomplish the transfer of care from the pediatric epilepsy specialists to the adult epilepsy. specialists This project is being piloted in collaboration with the grantee s colleagues in the Department of Pediatrics and. Communicable Disease Neurology Section the University of Michigan Ann Arbor Michigan The Michigan project is based in. their Title V Children with Special Health Care Needs program within Michigan Department of Health and Human Services. In addition transitions was included as a key educational component of the AAP CYE Project ECHO curriculum The AAP partnered. with the University of New Mexico Project Extension for Community Healthcare Outcomes ECHO to expand existing capacity to. provide best practice care for CYE in rural and underserved areas Finally with help from its advisory committee the Center also. recently updated content to the HealthyChildren org website and integrated content on transitions. Seizures and Epilepsy in Children Spanish How to Support a Child with Epilepsy. Seizures Spanish Febrile Seizures Spanish,Diagnosis and Treatment. For additional information please contact Trisha Calabrese MPH Director of Innovation at tcalabrese aap org. Health Care Transitions David Wood MD MPH FAAP, On April 2nd Coordinating Center on Epilepsy Advisory Committee Member Dr David Wood MD MPH FAAP presented an. overview on transitional care Including what defines health care transitions factors impacting transitional care for youth with. epilepsy barriers to adult care and how to improve health care transitions overall. Click on the YouTube arrow below to view the presentation. Page 4 June 2015 Newsletter Coordinating Center on Epilepsy. Practice Transformation Webinar Series,Value Based Contracting with Payers. Presented by Tom Long MD FAAP July 15 2015 at 12 00 Noon Central Time To register for this FREE webinar click. Participants will, Learn the meaning and intent of value based contracting terms and provisions. Identify key questions to address in reviewing a value based payment contract. How to assess the amount of risk to the practice and payer. Learn to assess your practice s readiness to enter into a value based contract. How to Prepare Your Practice for Implementing Alternative Payment Models. Presented by Suzanne Berman MD FAAP August 12 2015 at 12 00 Noon Central Time To register for this FREE webi. nar click here,Participants will, Assess the impact of new payment models to the practice.
Identify key practice management and clinical areas that impact cost revenue under value based payment. Learn strategies to effectively prepare and enhance the practice operations under value based payment. COMING SOON Let the AAP help you transform your practice into the medical. home model of care with the NEW NCQA standards, The 2014 NCQA Standards are being added to the AAP Digital Nav. igator and will be available this summer As you aim to be a Pa. tient and Family Centered Medical Home within the National. Committee for Quality Assurance NCQA standards look to the. AAP to be your partner and help guide the way For more infor. mation contact dnsales aap org, Page 5 June 2015 Newsletter Coordinating Center on Epilepsy. New Coding and Reimbursement Tip Sheet for Transition from Pediatric To Adult Care. To support the delivery of recommended health care transition services in pediatric and adult primary. and specialty care settings Got Transition and the American Academy of Pediatrics partnered to develop. a transition payment tip sheet The resource includes a summary of innovative payment methodologies. and a comprehensive listing of transition related CPT codes and corresponding Medicare fees effective. as of 2015, In 2014 a new set of clinical resources were provided by Got Transition called the Six Core Elements of. Health Care Transition 2 0 Consistent with the AAP AAFP ACP Clinical Report on Health Care Transition. these tested Six Core Elements define the basic components of health care transition support with. linked sample tools for primary and specialty practices serving youth and young adults between the ages. of 12 26 Aligning payment with these recommended transition services is a critical step for ensuring. that all young and young adults especially those with chronic conditions effectively transition from pedi. atric to adult health care, Healthy Tomorrows Can Help with Project Sustainability. The Healthy Tomorrows Program in cooperation with X Factor Consulting LLC has released a series of. tip sheets to support community based programs in planning for sustainability in their organizations. Thinking about a sustainability plan in the first year of funding can improve chances of sustaining the. project after grant funding ends These tip sheets were made possible with support from the Health Re. sources and Services Administration, Pediatric Care Coordination Beyond Policy Practice and Implementation.
View the National Center for Medical Home Implementation NCMHI 3 part recorded webinar series. focusing on implementing measuring and sustaining care coordination in pediatric practice and. across multiple care systems Expert faculty include authors of the Pediatrics policy statement Patient. and Family Centered Care Coordination A Framework for Integrating Care for Children and Youth. Across Multiple Systems, View the recorded webinars PowerPoint slides and audience questions here. Leonard P Rome CATCH Visiting Professorships,Call for proposals are now open. Applications are due Wednesday July 8 2015 at 2 00 PM CDT. The Community Pediatrics Training Initiative CPTI partners with The Community Access to Child. Health CATCH Program to offer the Leonard P Rome CATCH Visiting Professorship Program The pur. pose of the Leonard P Rome CATCH Visiting Professorship Program is to promote advocacy for chil. dren and advance the field of community pediatrics The program provides up to 8 accredited pediat. ric residency programs up to 4 500 each to fund a 2 or 3 day educational program focusing on the. field of community pediatrics, Page 6 June 2015 Newsletter Coordinating Center on Epilepsy. Epilepsy is the most common neurological disorder in. adolescence, Currently affects more than 300 000 children under. the age of 15, 200 000 new cases of epilepsy are diagnosed each year.
45 000 children under the age of 15 in the US develop epilepsy each year. Approximately 1 in 26 People in the United States Will Develop Epilepsy at Some. Point in their Lifetime, 150 000 new cases of epilepsy are diagnosed each year. Project ECHO Kansas Missouri Successful Launch, Kansas and Missouri launched their first Child Youth CYE ECHO series on May 26 th through a joint partnership between. University of Kansas Medical Center Research institute Inc KUMC and Children s Mercy Hospital CMH. The clinics will be held on Tuesdays at 12 pm CST bi weekly Furthermore continuing education credits will be offered to physi. cians APRNs and Nurses For more information please contact Meagan Dorton at mddorton cmh edu or 816 234 9384. Ahmed Abdelmoity MD Epileptologist CMH Dedrick Hooper KUMC. Kathy Davis PhD KUMC Chet Johnson MD FAAP KUMC,Meagan Dorton MSN MBA RN CPN CMH Jermey Ko KUMC. Janine Gracy MSE CHES CPP KUMC Lisa J Large MSBE CMH. Dale Grube MA KUMC Eve Lynn Nelson PhD KUMC,Megan Gustafson APRN CMH Joy Williams KUMC. Page 7 June 2015 Newsletter Coordinating Center on Epilepsy. Coordinating Center on Epilepsy Site Visits Home and Away. The Coordinating Center welcomed the ECHO Chicago team to the AAP Nation. al Headquarters in Elk Grove Village IL Special thanks to Daniel Johnson MD. FAAP Director ECHO Chicago Dana Sohmer MA Project Coordinator and. Zuoli Zhang MS Research Specialist for visiting our office and for the engaging. conversation regarding, Feedback on the ECHO Chicago CYE expansion project.
Updates from work at ECHO Chicago,Updates from the AAP ECHO Expansion project. From left Dr Johnson, Discuss opportunities for collaboration Zuoli and Dana. The Center conducted an in person site visit with the Epilepsy Foundation New Jersey EFNJ to discuss the. progress of the program initiatives EFNJ partnered with the Northeast Regional Epilepsy Group Epilepsy. Foundation of Connecticut and the Epilepsy Foundation of Northeast New York to implement a community. based system of services for children and youths with epilepsy and their families. Meeting participants included, Eminet Abebe Gurganus MPH part time MOC Coordinator Connecticut Children s Medical Center. Jenna Andolora Epilepsy Resource Coordinator EFNJ, Basil Bruno MD FAAP part time lead pediatrician at Pedimedica Rochelle Park. Trisha Calabrese MPH Director Division of Innovation AAP. Meghan Carnowski MPH Health Educator Grant Coordinator EFNENY part time. Liza Gundell Deputy Director EFNJ,Eric Joice Executive Director EFNJ part time.
Steven Kairys MD FAAP NJAAP, Pamela Kelley PhD Kelley Analytics Evaluator Part time. Andrea Racioppi Associate Director EFNJ, Center staff was delighted to receive a visit by its Medical Director. Sucheta Joshi MD MS FAAP,Dr Joshi provided a summary of the meeting. It was pleasure to visit the AAP and meet the CYE Coordinating Center. team in person Trisha Doris and Amy were perfect hosts and the day. had a packed agenda to review the upcoming Grantee and Advisory. Committee meetings in Washington DC on June 17 th and 18th I am. thrilled to see all the GREAT work that the grantees and the Coordi. nating Center have done in the last year Much has been accomplished. to make a difference in the lives of children and youth with epilepsy and. their families Everybody at the AAP and on all the state grantee teams. should give themselves a pat on the back, Looking forward there still is much to be done to improve access to care. and quality of life of children and youth with epilepsy The meetings in. Washington DC provide that impetus to continue with this great and. meaningful work, Page 8 June 2015 Newsletter Coordinating Center on Epilepsy.
Epilepsy in ICD 10 CM, As ICD 10 CM approaches it is important to understand the new code structure and any changes that will impact the codes used. most Under category G40 Epilepsy and Recurrent Seizures there are many new terms and requirements in order to report. the most specific code in the code set In most cases ICD 10 CM affords clinicians to be able to report in greater detail the pa. tient s condition At the G40 category level there is a note that states the following terms are to be considered equivalent to. intractable pharmacoresistant pharmacologically resistant treatment resistant refractory medically and poorly controlled. This is important for coders to recognize that these terms are used interchangeably in the ICD 10 CM code set It is also im. portant to note that G40 has several Excludes 1 codes In ICD 10 CM an Excludes 1 note means not coded here An Excludes1. note indicates that the code excluded should never be used at the same time as the code above the Excludes1 note. The following conditions codes are excluded from all codes under the G40 category. conversion disorder with seizures F44 5 convulsions NOS R56 9 hippocampal sclerosis G93 81 mesial temporal sclerosis. G93 81 post traumatic seizures R56 1 seizure convulsive NOS R56 9 seizure of newborn P90 temporal sclerosis. G93 81 Todd s paralysis G83 8, The epilepsy codes have additional detail that is not found in ICD 9 CM. Under the G40 category there are 10 subcategories to further detail the specific type of epilepsy Note that all of these subcat. egories with the exception of code G40 89 will require a 6th digit for a complete code. G40 0 Localization related focal partial idiopathic epilepsy and epileptic syndromes with seizures of localized onset. G40 1 Localization related focal partial symptomatic epilepsy and epileptic syndromes with simple partial seizures. G40 2 Localization related focal partial symptomatic epilepsy and epileptic syndromes with complex partial seizures. G40 3 Generalized idiopathic epilepsy and epileptic syndromes. G40 A Absence epileptic syndrome, G40 B Juvenile myoclonic epilepsy impulsive petit mal. G40 4 Other generalized epilepsy and epileptic syndromes. G40 5 Epileptic seizures related to external causes. G40 8 Other epilepsy and recurrent seizures,G40 9 Epilepsy unspecified. In order to complete all the subcategories above with the exception of G40 89 Other seizures add a 5th and 6th character. Subcategory 5th Character 6th Character,G40 0 0 not intractable 1 with status epilepticus.
G40 1 1 intractable 9 without status epilepticus or NOS. Subcategory G40 8 is broken down differently under the 5th character as follows. G40 80 Other epilepsy G40 81 Lennox Gastaut syndrome G40 82 Epileptic spasms G40 89 Other seizures. Each subcategory above except for G40 89 will also require a 6th character as follows. 1 with status epilepticus,9 without status epilepticus or NOS. Unspecified codes will not be removed from the ICD 10 CM nomenclature and still have their place If the encounter ends with. the clinician unable to determine specifically the type of epilepsy the patient has a code from subcategory G40 9 should be re. SEIZURE CONDITIONS FOUND ELSEWHERE IN THE CLASSIFICATION. There are other areas in ICD 10 CM where you could find yourself coding for an encounter where a seizure has taken place how. ever you will not report a code from the G40 category. Page 9 June 2015 Newsletter Coordinating Center on Epilepsy. Epilepsy in ICD 10 CM cont d, Under the signs and symptoms chapter there are codes for convulsions seizures not elsewhere classified These conditions fall. under category R56 Category R56 has an Excludes1 note for dissociative convulsions and seizures F44 5 epileptic convulsions. and seizures G40 and newborn convulsions and seizures P90. R56 00 Simple febrile convulsions seizures R56 1 Post traumatic seizures. R56 01 Complex febrile convulsions seizures R56 9 Unspecified convulsions. Including atypical or febrile seizure and complicated febrile seizure Including convulsion disorder fit NOS recurrent convulsions. seizure s convulsive NOS, For convulsions of the newborn report the specific code from the neonatal chapter This also includes when the convulsions. begin within the first 28 days of life This code may also be used if the condition is affecting the patient beyond the neonatal peri. od so long as it originated in the perinatal period defined as birth through the 29th day of life since the day of birth is day 0. Code P90 convulsions of newborn is reported in this instance The P90 code has an Excludes1 note for subcategory G40 3. benign myoclonic epilepsy in infancy or benign neonatal convulsions familial. If a patient presents with a conversion disorder coupled with seizures or convulsions report the appropriate conversion disorder. code that includes seizures or convulsions not a code from the G40 category Code F44 5 conversion disorder with seizures or. convulsions is reported in this instance,STATUS EPILEPTICUS. One of the major changes in the classification for epilepsy is now to be able to define those patient s with status epilepticus. Status epilepticus is a common neurological emergency with considerable associated health care costs morbidity and mortality. Because of this ICD felt it was important to distinguish it from without status There are variations in the definition however the. clinician will need to document that they have diagnosed the patient with status so it can be properly coded for and therefore. will allow for the increase in cost in treating and caring for the patient If it is not documented query the physician or report the. without status code as that is the default code,LINKING DIAGNOSIS TO PROPER ICD 10 CM CODE.
Listed below are some of the more common diagnoses seen for pediatrics and the proper ICD 10 CM code. Diagnosis 1 Benign epilepsy of childhood with centrotermporal spikes not documented as intractable or with status. G40 009 Localization related focal partial idiopathic epilepsy and epileptic syndromes with seizures of localized onset not. intractable without status epilepticus, Note that in the index you are re directed to this code see below. Index Epilepsy benign childhood with centrotemporal EEG spikes see Epilepsy localization related idiopathic. Diagnosis 2 Childhood absence epilepsy intractable not documented as with status. G40 A19 Absence epileptic syndrome intractable without status epilepticus. Diagnosis 3 Juvenile myoclonic epilepsy not documented as intractable or with status. G40 B09 Juvenile myoclonic epilepsy not intractable without status epilepticus. Diagnosis 4 Infantile spasm intractable not documented with status. G40 824 Epileptic spasms intractable without status epilepticus. Note Under the sub category Epileptic spasms there will be a sub entry for infantile spasms. Providers Be sure to document intractable and status epilepticus as appropriate in order to get to the most appropriate code. for the patient s condition Coders contact the provider with questions about terms. Happy Coding, Page 10 June 2015 Newsletter Coordinating Center on Epilepsy. 2015 National Conference and Exhibition Section on Neurology Sponsored Sessions. SATURDAY OCTOBER 24 2015, I1112 Telementoring as a Strategy to Reach Children Globally 2 00 3 30 pm. Faculty Sanjeev Arora MD and Sucheta Joshi MD MB MS FAAP. Course Description Children with chronic medical conditions asthma diabetes epilepsy ADHD etc frequently do not have access to subspe. cialists and wait times for an appointment can exceed months This promises to be an inspiring but practically useful interactive group forum as. the founder of Project ECHO Extension for Community Healthcare Outcomes shares how this model of care has increased access to subspecial. ty care within the medical home around the globe for several medical conditions. SUNDAY OCTOBER 25 2015, F3008 One Seizure Two Seizures What Do I Do Now 7 30 8 15 am Repeats as S2057 on Sunday October 25 2015 at 9 30 am. Faculty Paul Graham Fisher MD FAAP, Course description When a child presents with a first or second seizure both temperature and anxiety can be high Do you know how to evalu.
ate and manage the child with a first or second febrile seizure or seizure without fever Come review the most current approach for handling a. child with new onset seizures and review AAP guidelines that address. P2076 Changing the World of Pediatrics How Telementoring Can Aid in Reaching Children Globally 10 00 am 10 40 am. Faculty Sanjeev Arora MD, Course description Children in the United States and across the globe with chronic medical conditions asthma diabetes epilepsy ADHD etc. often lack access to subspecialists as wait times for an appointment can exceed months In rural areas it is not uncommon for families to drive. nearly 200 miles to see a subspecialist resulting in costly travel time away from work school and parents feeling intimidated by big city navi. gation This plenary session promises to be inspiring and thought provoking as the founder of Project ECHO extension for community. healthcare outcomes shares how this model of care has increased access to subspecialty care within the medical home and around the globe. for several medical conditions,MONDAY OCTOBER 26 2015. S3154 What Happens Next Update on Epilepsy Treatment 4 00 5 30 pm Repeats as S4106 on Tuesday October 27 at 4 00 to 5 30 pm. Faculty Dewi Frances T Depositario Cabacar MD and Ajay Gupta MD FAAP. Course description Nearly 30 of patients with epilepsy have seizures that are not controlled by medication There are many options for this. population including newer medications epilepsy surgery dietary therapy and nerve stimulation Recent media reports have highlighted sup. plements and plant based therapies as well Come listen to our experts discuss what to do when the older medications are not working. A3140 Shake Rattle and Roll Was That a Seizure 4 00 4 45 pm. Faculty Sarah Nicole Kelley MD and Eric Heath Kossoff MD. Course description Did you see that Was that a seizure Something else A breath holding spell myoclonus shuddering attack migraine tic. faint or something else Come learn how to sort out and identify the spells that will present in your practice and lean what is neurological car. diac or even benign,Interested in learning more Please visit. AAP 2015 National Conference Website www aapexperience org Plenary Sessions www aapexperience org plenary. 2015 National Conference Preliminary Program www aapexperience org program Registration www aapexperience org register. AAP Conference Planner www aapexperience org planner Hotel Reservations www aapexperience org hotels. Page 11 June 2015 Newsletter Coordinating Center on Epilepsy. June July Aug,Calendar of Events, New Mexico CYE TeleECHO Clinics Kansas Missouri CYE TeleECHO Clinics. 12pm 130pm MST 12pm 1pm CST,06 23 15 07 21 15 07 07 15 08 04 15.
06 30 15 07 28 15 07 21 15 08 18 15,07 07 15 08 04 15. 07 14 15 08 18 15 MetaECHO Conference Call,07 08 15 2pm CST. Illinois CYE TeleECHO Clinics 08 12 15 2pm CST,8am 9am CST. 06 29 15 08 03 15,07 13 15 08 17 15,For more information regarding. 07 27 15 08 31 15 the TeleECHO Clinics contact,Amy Shah MPH Project Manager.
Project ECHO,Colorado CYE TeleECHO Clinics,12pm 1pm MST. 06 30 15 07 21 15,07 07 15 08 04 15,Those who have learned to. collaborate and improvise most 141 Northwest Point Blvd. Elk Grove Village IL 60007,effectively have prevailed Phone 1 800 433 9016.

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